The Farr Disease: One Family's 150-Year Battle Against ALS, by Dan Swainbank
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The Farr Disease: One Family's 150-Year Battle Against ALS, by Dan Swainbank
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In 1880, Dr. William Osler of McGill University in an article entitled, “Heredity in Progressive Muscular Atrophy as Illustrated in the Farr Family of Vermont,” reported on the case of a farmer from Sutton, Vermont named Erastus Farr, and of thirteen members of his family who had died young of a disease now known as Familial Amyotrophic Lateral Sclerosis. In his well-researched book, Dan Swainbank tells the continuing story of the family’s losses over the next 135 years, of the advances in our understanding of ALS and the discovery of the family’s defective gene in 1993, and the family’s involvement in the on-going search for a cure. It is also an account of the love and support of a family and community which keeps the hope alive that someday this sad story will have a happy ending.
The Farr Disease: One Family's 150-Year Battle Against ALS, by Dan Swainbank- Amazon Sales Rank: #1301452 in eBooks
- Published on: 2015-09-08
- Released on: 2015-09-08
- Format: Kindle eBook
About the Author The Farr Disease is Dan Swainbank’s second book. A former high school and college writing teacher, Dan is also the author of Mr. Vail is in Town: Theodore N. Vail, AT&T and His Lyndon Legacy. He writes about national and international history with chapters based in northeastern Vermont. Dan lives in North Danville, Vermont.
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Most helpful customer reviews
0 of 0 people found the following review helpful. Dan Swainbank does an excellent job of describing a complex By Barry G. Dan Swainbank does an excellent job of describing a complex, debilitating disease - amyotrophic lateral sclerosis - further complicated by a genetic predisposition. The Farr family of Vermont is a subject of medical and scientific interest but told with the warm and rich stories of the family and its community. Well researched and clearly written for the layman. A must for consumer health collections in medical, hospital and larger public libraries.
1 of 1 people found the following review helpful. Masterful and Well Done. By sslafter I know the Farr Family, and some of the extended cousins. I know the story of the family through the years. It is a complex family history compounded with a supremely challenging hereditary disease. I didn't think it was possible to convey in writing the full complexity of their story. Dan Swainbank elegantly and swiftly carries the reader through the story. He masterfully weaves in the current state of neurodegenerative research with the emotional and significant family burden. Anyone wanting to understand ALS, hereditary disease, or interested in the powerful role of genealogy in understanding family affairs, will thoroughly enjoy this book. A powerful story well told.
1 of 1 people found the following review helpful. Very well-written, fascinating book By Christina Heartbreaking, yet fascinating story of a family deeply affected by FALS. My heart goes out to the family, and I applaud their courage and strength to face this disease head-on.
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